Update on Cambria's Eyes

A few pictures I took at the doctors office after they dialated her eyes and we were waiting to see the doctor again (she likes to stand up and pretend to walk).

Well, today was an eventful day. Gavin turned 4, had his first soccer game, and Cambria was seen by a pediatric ophtomologist. We were dealt some shocking news by the doctor, but not devistating. It was quite a little lesson in ophtomology for 2 people who have never worn glasses or contacts. She was diagnosed with Albinism, Esotropia, and Nystagmus- those are some big words! I will do my best to explain them a little better. Albinism is a genetic disorder, yes it is the same thing that Albinos have. The other 2 are common effects of Albinism and in girls (with dark hair and dark eyes) are often the only way to diagnose it. She has dark hair and darker blue eyes, so it is probably a different form of Albinism than the white hair and light eyes- there are several different forms. We asked the doctor if it was a mild form and to our surprise he said no it is probably just a different form. She lacks a lot of pigment in her eyes that most children have. The Esotropia is why her eyes are crossed most of the time, that is how she is trying to focus. The Nystagmus is why her eyes shake frequently. The albinism explains the extreme sensitivity to light that she has had since birth. Sensitivity to light will always be an issue with her eyes and possibly skin. There is the possibility that her form will only effect her eyes, to what extent we don't know. She will be getting glasses to hopefully fix the Esotropia and nystagmus. She will always wear glasses, unless she will be able to have surgery some day to fix her eye sight. We are going to be seeing a genetic specialist and hopefully learning more about Albinism and her form. She will have an MRI on May 6 to rule out anything else causing these issues. I am relieved she can see, but am concerned with how well she can actually see. She doesn't act like she can see much at all, hopefully the glasses will help that. We will probably not know the extent of her vision until she is a little older. Thank you so much for all your prayers. We will keep you updated. God is with us and working through us.