I am doing my best to keep up, things are pretty crazy around here and this post is 2 days late. Mon. Ainsley was officially 1 month old. It's crazy how fast the first 4 weeks went. I am doing my best to enjoy every moment of this little one, she is growing so fast.
She is a pretty good baby, as cute and cuddly as can be. She does still have quite the scream- not as much squeaking. She hasn't figured out how to entertain herself, so when she is awake she wants to be held and will let you know. She is a good eater and sleeper, still not much of a schedule but that's okay (I am not a big scheduler) since most nights she sleeps (in between feedings every 3 to 4 hours). I am enjoying all the cuddling, she does LOVE to be held especially by her mommy! No smiles yet, but hopefully soon.
We are watching her eyes carefully and curious about albinism. For those of you who are new to our blog if you look back to my post in April of 2008 you can read about our 3rd child Cambria and albinism. There is a 1 in 4 chance Ainsley has it, it will be the same type as her sisters but can have different side effects. She has shown signs, but doesn't have nearly as many symptoms as Cambria did. Her eyes aren't crossed most of the time, don't shake as frequently, don't seem to be as sensitive to light, and do function together. She isn't tracking well, she has no reaction to what she is seeing and when she does follow something with her eye it is with a twitching movement (quick movements back and forth). Another sign of albinism is her lack of pigment in her nipples- crazy I know, but that is one of the ways the geneticist identified it in Cambria. Honestly if we didn't have one with albinism, we wouldn't even be thinking something might be wrong (hopefully nothing is). The only way to know for sure is the ophthalmologist- her eyes must be dilated so he can look behind them. We are thankful that her eyes are functioning much better than Cambria's were at a month and if she does have it, hopefully the effects of it will not be as extreme and her vision will not be too bad. Thanks for all your prayer and we will keep you updated!
Ainsley has strawberry blonde hair, dark blue eyes, pale skin, and long skinny arms and legs.
3 comments:
She is so cute! I can't imagine how busy you are with four kids now! I really hope the albinism is not a problem. Keep us updated as you can -but enjoy your time with your babies more. Hang in there! Love you, my friend!!
She is getting so big and cute. I can't believe I probably see her until she is five months old :(. We miss you
Oh she's beautiful! It seems like last week Jess was telling me you were wondering when she'd get here and now she's already a month old. Best wishes!
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